Joe O’Brien is a forty-four-year-old police officer from the Irish Catholic neighborhood of Charlestown, Massachusetts. A devoted husband, proud father of four children in their twenties, and respected officer, Joe begins experiencing bouts of disorganized thinking, uncharacteristic temper outbursts, and strange, involuntary movements. He initially attributes these episodes to the stress of his job, but as these symptoms worsen, he agrees to see a neurologist and is handed a diagnosis that will change his and his family’s lives forever: Huntington’s Disease. Huntington’s is a lethal neurodegenerative disease with no treatment and no cure. Each of Joe’s four children has a 50 percent chance of inheriting their father’s disease, and a simple blood test can reveal their genetic fate. While watching her potential future in her father’s escalating symptoms, twenty-one-year-old daughter Katie struggles with the questions this test imposes on her young adult life. Does she want to know? What if she’s gene positive? Can she live with the constant anxiety of not knowing? As Joe’s symptoms worsen and he’s eventually stripped of his badge and more, Joe struggles to maintain hope and a sense of purpose, while Katie and her siblings must find the courage to either live a life “at risk” or learn their fate.
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Lisa Genova
Lisa Genova é Ph.D. em neurociência por Harvard, e viaja pelo mundo inteiro dando palestras sobre o Alzheimer e outros males da mente, além de ter feito aparições em diversos programas de TV e apresentado um TED Talk com mais de três milhões de visualizações. Para sempre Alice foi seu livro de estreia, publicado pela primeira vez em 2007, e adaptado para os cinemas em 2014, com Julianne Moore no papel principal. Lisa mora com a família em Massachusetts, nos Estados Unidos.
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